This program was designed to support multidisciplinary teams in establishing and strengthening specialist amyloidosis services through expert guidance, practical tools, and region-specific insights.
From global awareness to regional, locally relevant guidance
- A global webinar built shared understanding of the need for specialist amyloidosis centers and the complexities of diagnosis, treatment, and coordinated care.
- Regional roundtable meetings (EU, Asia and LATAM) explored nuanced barriers, from healthcare system differences to referral patterns and resource variability.
- Qualitative insights from these roundtables were captured in tailored regional reports, providing locally relevant, practical guidance that learners can revisit and apply in their own clinical settings.
- A suit of practical, usable toolkits to support implementation was developed, including center setup checklists and resources; a global Amyloidosis center directory highlighting centers of expertise for referral and collaboration; and FAQs, success stories, multidisciplinary team videos, and practical advocacy tools.
- Ongoing expansion of case-based modules and customizable tools designed to support real-world implementation across regions.
Qualitative, learner-driven insight has informed program growth
- Regional roundtables generated rich qualitative insights on barriers and implementation challenges across diverse healthcare settings.
These insights directly informed the development of:- Additional customizable awareness and outreach resources.
- Case-based eLearning modules to support clinical decision-making and operational planning.
- Region-specific success story videos and reports to model best practices and solutions.
- Ensures the IME remains responsive to real-world needs and directly applicable to multidisciplinary teams establishing or strengthening amyloidosis centers.
By combining global education with regionally tailored insights and practical tools, the program has evolved into a scalable, learner-driven model that supports amyloidosis center development across diverse healthcare systems.
Program formats
Webinar | Success story videos | ‘Meet the team’ multidisciplinary videos | Toolkit of practical resources | Global Amyloidosis Center Directory | Regional roundtable meetings | Summary report + FAQ video library | Case-based eLearning modules | Customizable awareness and outreach toolkit
Faculty
Prof Mariana Fontana, Dr Vaishali Sanchorawala, Prof David Adams, Drs Ines Losada, Paolo Milani, Roberta Mussinelli, Laura Obici, Eugenia Cisneros-Barroso, Cristina Descals, Juan González-Moreno, Damian Heine Suñer, Yawara Kawano, Prof. Dr. Sebastian Spethmann, Prof Mitsuharu Ueda, Mrs Christine Chiti
Target audience
Neurologists, cardiologists, hematologists, gastroenterologists, orthopedic surgeons, nephrologists, geneticists, physiotherapists, psychologists, pathologists, nurses, and other HCPs involved in diagnosis and management of patients with amyloidosis.
